Ehlers-Danlos National Foundation Center for Clinical Care and Research at GBMC's Harvey Institute for Human Genetics
GBMC is grateful to be the home of the Ehlers-Danlos National Foundation Center for Clinical Care and Research at GBMC's Harvey Institute for Human Genetics. This virtual center is constructed to provide comprehensive care for patients, professional education for physicians and develop research in the field. Ehlers-Danlos is believed to affect about one in 2,500 to one in 5,000 individuals worldwide.
Clair Francomano, MD serves as the Director of Adult Genetics and the Director of the newly established center. "We are extremely grateful to EDNF for their support which will allow us to explore new treatment options for patients and raise awareness among physicians. It is our hope that these efforts will lead to earlier diagnosis and better treatment options for patients with EDS, and provide the opportunity for continued research into the causes of EDS," said Dr. Francomano. "Knowledge concerning the underlying causes of the disease will enable us to seek rationale therapies for this complex and disabling condition." "Partnering with the Greater Baltimore Medical Center to open the first ever EDNF Center for Clinical Care and Research is an exciting new initiative for the foundation," Clark said. "EDS often goes undiagnosed because physicians are not aware of the disease. The funding EDNF is providing to establish this clinic is a major step forward in advancing our mission to educate healthcare practitioners and patients and provide treatment to help people living with EDS." New patients can go to www.gbmc.org/adultgenetics to access the pre-visit questionnaire. Once this is received within the office via email, fax or mail, the office will call to schedule an appointment.
If you would like to make a donation to the EDNF Center for Clinical Care and Research at GBMC's Harvey Institute for Human Genetics, please go to ednf.org/ednf-center.