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The Harvey Institute for Human Genetics

Ehlers-Danlos Society Center for Clinical Care and Research at GBMC's Harvey Institute

GBMC is grateful to be the home of the Ehlers-Danlos Society Center for Clinical Care and Research at GBMC's Harvey Institute for Human Genetics. This virtual center is constructed to provide comprehensive care for patients, professional education for physicians and to develop research in the field. Ehlers-Danlos is believed to affect about 1 in 2,500 to 1 in 5,000 individuals worldwide.

Clair Francomano, MD serves as the Director of Adult Genetics and the Director of the newly established center. "We are extremely grateful to Ehlers-Danlos Society for their support which will allow us to explore new treatment options for patients and raise awareness among physicians. It is our hope that these efforts will lead to earlier diagnosis and better treatment options for patients with EDS, and provide the opportunity for continued research into the causes of EDS," said Dr. Francomano. "Knowledge concerning the underlying causes of the disease will enable us to seek rationale therapies for this complex and disabling condition." The funding the Ehlers-Danlos Society is providing to establish this clinic is a major step forward in educating healthcare practitioners and patients and providing treatment to help people living with EDS.

If you would like to make a donation to the Ehlers-Danlos Society Center for Clinical Care and Research at GBMC's Harvey Institute for Human Genetics, please go to ehlers-danlos.com.

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